When I think of Scott. I think of light. He is a light to this world. Thats probably why I am totally not surprised for all the medical stuff he has to endure.
Everyone needs compassion,
Love thats never-failing;
Let mercy fall on me
Everyone needs forgiveness,
The kindness of a Saviour;
The hope of nations
- Mighty to Save by Hillsong
Yesterday was a hard day. Spending 5 hours at NIH (National Institute of Health). We had to pass security, they literally look through your truck, purse and you walk through a metal detector. Go to admissions which is a pretty long process, but truly enjoyable. The people there are wonderful. Much more people oriented than Johns Hopkins. We were speaking to our admissions lady, she was super chatty with us, I think it was because her name was Sonia, and Scott said our sister in law’s name is Sonya and she asked how she spells it. We talked about children, her daughter is 31 and how she wants grandbabies but her daughter told her she keeps on asking too much. I mentioned maybe you should just pray about it and trust the Lord to move her heart. The woman realized we were believers and she opened up even more because she was a believer. We were talking about how the process has been for Scott, looking for a solution to what is causing these spasms in him, she said she would pray for us today. Talking and filling out forms with her took about an hour.
Went to the neurology section, it was great! They had a little waiting room, a mini fridge with snacks, water, coffee a computer you could log into. They did everything to make people waiting super comfortable. We waited for about a half an hour maybe more. Met with the first nurse who just took Scotts stats, took his blood pressure while he was laying down then standing up really quick, mentioned his weight lose (he has lost a lot of weight over the past 3+ years), everything looked normal, he was healthy.
Had one of the interview Dr’s come in. Scott and her talked in a nerdy medical language that I understood slightly. Thanks to Scott Im getting better. This took about an hour and a half. She had us wait about 45 mins as she talked to the council of Dr’s, there were about 12 of them. She called us in. She informed us before that these dr’s were the top neurologists in the united states besides some guy in Texas.
Scott did amazing during the interview. I believe they were surprised on how well-educated he is about his condition. Towards the end the Dr was asking basic questions. Then he was asking Scott if his condition causes anxiety (We found out later that 90+% of the cases that come in the people are depressed or super anxious about their condition). Scott said of course when it happens he feels some anxiety because of the pain and what he has experience in the past after the pain. That during the pain is the only time he thinks about it, and its because when it occurs it hurts. But other than that he is not anxious about death or about losing his job or his families or friends response to it, because he has a great support system and he knows where he is going after he dies. Then Scott said “Do you wanna hear a funny story” and the main Doctor jumped right into that one and said “Sure I would love to hear a funny story”. I am thinking oh no what is Scott going to say is he going to share some embarrassing story from when he was a high school youth leader. He then shares the story from Jan 1, 2001. Scott was praying in the morning on his knees and as he was praying asking the Lord for help that day, the thought went through his head “I will walk with you”. He kinda blew it off and kept on praying and the same thought went through his head “I will walk with you”. Scott said okay God I got it I hear you, then again the thought went through his head “I will walk with you” . At that point Scott said okay I dont understand why this keeps going through my head but okay I hear you. He then got up took a shower and in the shower he got a bulge on the right side of his chest cavity and started losing his ability to walk and got all crumpled up. He called his dad and he came over and picked up Scott and took him to the ER. Pretty much that is when Scott started going to the doctors hard-core and pursuing whats been going on with his body. Its been almost three years ago. Then Scott shared that the Lord has walked him through this and this is why he is not anxious. That his church, family, close friends and job have been super supportive of him. That the Lord has not failed him he has walked with Scott. The Dr then responds “so you are a very religious man” and Scott says “I dont know about religious, but I know where I am going to go when I die. I know that Jesus christ died for me and I know when I eventually die and go to heaven I will be with him.”
Saviour, He can move the mountains
My God is Mighty to Save
He is Mighty to Save
Forever, Author of Salvation
He rose and conquered the grave
Jesus Conquered the grave
- Mighty to Save by Hillsong
I sat there shocked. Couldn’t believe that Scott just shared the gospel with a whole council of the top neurology doctors. Part of me was like “Oh no they are not going to take him seriously, he should have just stuck to the facts and shared about his medical history” but then I just felt super comforted and thought this is the man I am going to marry and he is by far the boldest and most fearless man I have ever met. That the Lord is the great physician and only He has control over the hearts of men. The council to my surprise was actually pretty open to Scott sharing his beliefs. They thanked him and said they would be right with us. We waited in the waiting room and I cried. I knew that they were not tears of discouragement, but were tears that my heart is overflowed with joy in knowing Scotts heart and love for his savior Jesus.
So take me as You find me
All my fears and failures
Fill my life again
I give my life to follow
Everything I believe in
Now I surrender.
- Mighty to Save by Hillsong
The interview Dr met with us about 45 mins later to tell us the results from the council of doctors. The doctors said that they have never seen anything like this before. That Scott legitly has a medical condition, they are not 100% sure what it is. The thing that confounds them the most is that Scott is not like everyone else that comes in with a motion disorder, he is not depressed, he is not anxious, he has a great support system. Scott said this is because of his faith in Jesus. Also Scott has Type 1 diabetes, they are not sure if this comes into play. They said this is not cancer, not MS, not a whole bunch of other scary things, which my heart felt relieved. They said that this is a motion disorder and he is not crazy. They are going to continue looking into this as a team and would like permission to possibly plug him into some of their future approved trials.
My Saviour, He can move the mountains
My God is Mighty to save
He is Mighty to save
Forever, author of salvation
He rose and conquered the grave
Jesus conquered the grave
Shine your light and left the whole world see
We’re singing for the glory of the risen King…Jesus
- Mighty to Save by Hillsong
So this may not look like the 100% right answer. But for both Scott and I, it’s a great answer. We see that the Lord is still walking with Scott, still has him in the palm of His hands and still has control over Scotts medical condition.
We have prayfully decided that for now, until after the wedding, we are not going to pursue anymore paths. We are taking a break from it to focus and preparing for marriage.
I am honored and blessed to be walking alongside this great man of faith. He truly walks out Matthew 5:16.
Matthew 5:16
Let your light shine before men in such a way that they may see your good works and glorify your Father who is in heaven

MonChiChi
A picture of Scott while we were waiting….my last name is West so I always throw up the “West-Side” pretend gangsta sign…I gave Scott the nickname MonChiChi because on July 4th weekend in Florida he was looking for a nickname for me and couldn’t find one. He pulled up this website full of nicknames and one was MonChiChi. Since Scott was growing out his hair and beard I thought he looked just like one…and the nickname stuck. But yesterday while waiting for the Dr’s Scott was trying to make the west-side sign, we realized turning it upside down makes it the MonChiChi sign. Oh my seriously silly fiance…who can see goodness in every situation.